Showing posts with label diabetes support. Show all posts
Showing posts with label diabetes support. Show all posts

Saturday, November 18, 2023

Let The Storm Rage On

...the cold never bothered me anyway? Well, tis (almost) the season for such movies. You might have realised from the image above that this isn't a blog post about Frozen or Christmas  Instead, I'd like to talk about everyone's favourite subject; social media. Gah! I know quite a lot of you are now going to close this window, unfollow me, throw away your phone and report me to the police. I might deserve some of that! I mean, have you READ my tweets?! Jeez!

For the handful of you who remain, let's get into it. Sometimes, I "do a lot of socials" and not just for myself. From time to time, I work for others (volunteered and paid roles) alongside my own blathering. It's cool, I like the interactions and social media has opened a world of experiences for me. It's helped my health, too. My T1D is unrecognisable from what it used to be just 6 or 7 years ago. That's an incredible thing if you really consider it. It also paints the general population in a great light, especially diabetics, as they are the driving force behind my current diabetes management and stable health.

I've thanked the online diabetes community in several blog posts and posts on socials. They truly are a great bunch and if you're new to that world, embrace it and soak up all the info and support that you need. In other posts, I've issued warnings to people to be cautious online. Despite the majority of people having no agenda but to assist others and gain their own support, there will always be a minority who are looking for something else. What are those things? The list is likely long, but you can probably include; using others for profits, career progression, gratification, and self promotion. I've experienced those things and more. Perhaps you have, too. Whilst that's sad, particularly as the diabetes world is focused around health, it's not very surprising. This is the Internet, of course!

Part of the online diabetes community is GBDoc. You're probably aware of it if you stumbled upon this post via a link on one of my socials. I've had a lot of involvement in that community and, again, it's been tremendous. When I began tweeting about diabetes, I was very determined to not involve myself with any community or organisation. That probably lasted about a month! and after a year or so, I was asked to be a volunteer along with several others. Volunteers have come and gone in the last 5 years. They had their reasons and their departures didn't affect me. We remained friends, largely, and some are still kicking around on socials today.

And now it's my turn to depart.

I've simply lost the motivation to continue to freely give my time to GBDoc. There are reasons for that and there are absolutely a select group of people who are behind those reasons. To detail each would result in a very long blog post and it would probably create an online inferno. My own personal attacks have included accusations of stigmatising others, subversive posts that target others, discriminating against others who are not British, not fact-checking things I retweet (because I'm CNN, obviously)... and I'm going to stop there because even as I type those things, and even after some time has passed, I feel affected by those accusations and the shocking levels of entitlement to tell me how I run my own personal account. I'm not perfect. Indeed, there have been times when I've corrected or removed something I knew to be wrong or even something that could be misinterpreted. Over the years, I've listened to others and made apologies for my own errors and, unnecessarily, the misinterpretations of others. Those instances were on Twitter (now X) which has never really been the easiest place to read tone from or gain much from in the way of great detail - unless you have a verified account and you love writing essays, of course!

I'm not looking for sympathy. However, I feel sorry for my friend, Jules. She's well known for living with some serious conditions which are exacerbated by stress. To listen to her breaking and tearful about the whole saga was very tough. The non-apology and the carry-on-regardless nature of those involved was bewildering. "Bewildering" was the best I could muster after deleting various expletives. Of course, you should form your own judgements if you wish, but from someone "on the inside" I know the hurtful remarks made about GBDoc volunteers (managed by Jules) were so far removed from reality. I hope that she'll come back one day. I'm sure the community will continue to thrive in whatever guise. 

There is much more I could add to this post. I may follow up at a later date. There will, of course, be more blog posts on other subjects in the days, weeks and months to come. If you're from GBDoc, it's been lovely to volunteer for you since 2018. Stay well. 

If you enjoyed this blog and you'd like to support me over the time that I give to others, my online content, or if you'd like some direct support from me then check out these links:

Wednesday, January 4, 2023

Diabetes Is Work

The word Work is written in a large green font, the letter O is replaced by a clock

I don't know how many jobs we're supposed to have on average in our lifetime, I'm sure there is a study or some incredibly scientific research somewhere or maybe you already know? Let me know in the comments at the bottom of the blog if you do. Work? But, this is a diabetes blog! That's true, diabetes and ranting - often the two go hand in hand. However, my time spent in diabetes advocacy, supporting others, tapping out blog posts like this one, creating videos, talking to media... you get the idea, has steadily increased in the last three or four years. Something, unfortunately, has to give.

You may know that I've spent the last decade or so as a self employed worker. The benefits of that type of working life are many; working when I choose, always being employee of the month, etc but there are many cons to that too; no holiday pay, no sickness pay, working 100 hours a week, working 2 hours a week, etc - let's just say that it's not a stable way to earn a living, a little like playing a violin on the Titanic. Everything is lovely for periods and everything is not lovely for other periods and sometimes you're going to drown. 

What do I do? - I get asked this at nearly every diabetes conference or meet up! I make people feel beautiful. I sell cosmetics, at least, I used to. Now, not so much.

A quick look at what that job entails. I buy stock from wholesalers and flog it on the Internet. It's gone reasonably well although, I had no intention of doing the job for so long and I've backed away from that in the last three or four years. See paragraph one as to why that might be.

Not only has diabetes "stuff" begun to fill up more and more of my time and much as I hate to admit it, I've aged. 46 revolutions around the sun at the last count. I've also developed osteoarthritis in a shoulder which makes the lifting of heavy boxes a bigger struggle than ever before. Clearly, this vocation is no longer for me on a full time basis and I need to do something less physically demanding. 

From 2005 to 2010, I worked in the poker industry as well as playing the game to a pretty high level. My work in that industry taught me a lot about online marketing, socials and optimising for the almighty Google. I suspect that my blog does better than it might for that knowledge. So, is SEO the next step? While that's a perfectly fine form of work, it is rather like accounting; incredibly dull (I was once an assistant accountant, too). Work, at my age, needs to be a fulfilling thing as well as put food on the table. 

And back we go to diabetes advocacy. I love the diabetes community almost without exception. I've gained so much from my peers and friends that I doubt I could ever repay them. I do try, though and rarely does a day or two go by without somebody reaching out to me for some guidance. Sometimes the reaching out has been aggressive or tainted with accusations - still, I tried to help as best as I could as I try to see the good in everybody and I suspect frustrations can rise to the surface very easily when it involves our health. When it goes right, when a person gets the support which improves their life with diabetes, the satisfaction is enormous. I really can't compare it to anything else. There are a few examples of that, from late night messages about a dosage error to getting several people approved for an insulin pump and everything in between. It doesn't feel like work because I feel like I'm helping friends and I'll continue to do that for as long as I'm able. What it is, is time - You're understanding the image used for this post now, right?

Time is finite. There are 24 hours in a day, remove sleep time, eating, personal care, the demands of friends and family and you're left with a much lower number of hours in a day to work. That, of course, goes before such frivolous things such as going out and having fun. Time is very valuable and that's why we work for reward in the form of money. Perhaps if you work for the NHS, you work for very little money. We need that to buy our food, pay for the home we live in, pay for the energy to keep us warm and to help us go back to work again at the soonest opportunity to earn more money to do all the same things again. Wow! Now that I've written that, life is one endless depressing cycle of working and earning isn't it? Anyway! Most of us need to work to earn the money we need to live. 

I'm not changing anything that I do right now. If we have conversations then we always will, if I mentor you for free then that will continue, my socials and blog and vlogs and all that jazz will always be for free. What will happen is that I'll offer additional things and ask for a small amount of money for my time. You'll find details about such things at the bottom of this blog (The Blog Member link) and that's it. It'll start from £3 as an appreciation, a tip if you will, up to bigger sums for greater time-demanding support.

 I'm hopeful that means I can carry on doing the good things, the social posts, the talks, the articles and charity fundraising & volunteering while time dedicated to direct support and mentorship will no longer impact on my day to day income. Perhaps it'll mean that I can finally stop selling 20kgs of lipstick?! and concentrate my time on helping people to feel better rather than look great.