Sunday, October 20, 2024
Contented
Wednesday, October 5, 2022
From The Cradle To The Grave
Sunday, October 2, 2022
Puppy Low
...oh, I guess they'll never know! Donny Osmond, I think. Apologies if you read the last blog or even heard about it on the grapevine. I decided it would be better to not publish that particular post in the interests of the personal safety and causing any distress to the victims of that particular group of people. Instead, a complete change of tone with a photo of Billy. Cute, hey?
True, he is cute and a burning ball of nuclear grade energy. As we know, using our own energy burns up that glucose pretty efficiently in most of us and so "Puppy Low" rather than "Puppy Love" seemed like a good title for this post. Sorry, Donny.
Billy arrived during the final week of my Steptember Challenge. I was already exercising a lot more than usual and chalking up a good number of hypos during the first few weeks of the month, at least. This new, very cute, energy sapper really threw a spanner into the works. Very short but high intensity bursts of exercise were sending my BG tumbling. Alongside a different waking and sleeping pattern, it's made for a difficult week with Type 1 Diabetes. I'm adjusting... kind of.
The experience made me wonder about how others cope with different variables thrown into the mix on a frequent basis. Shift workers certainly sprung to mind but I'm sure there are others with equally or more challenging lives. The solution to many of the challenges and life changes which we experience is, of course, technology. I know, a tweak of the Banting Juice might keep things in order, a couple more finger pricks per day might do the trick too. However, for those wild times, the big life changes, the why does my puppy keep on pooping moments, it seems like tech is the answer.
Some of you may have read about a lady who had waited a year for a pump clinic appointment, only to be refused funding at that appointment because of her sleeping issues. Yeah, I didn't know whether to laugh or cry either. Other stories were shared, including a particularly bizarre refusal tale which the lovely Lesley Jordan (from JDRF UK) shared. Take a look, you'll see that on my time line among all the puppy photos. Technology within diabetes should always be burden reducing for us alongside improving or maintaining our long term outlooks. My switch to a pump has vastly improved my T1D burden and, so far, the numbers all suggest that my long term outlook is in a good place. Where would I be without the pump? Struggling, for sure. I certainly wouldn't be trying to walk 250,000 steps while puppying. It could be easier, too! I could be looping and many more highs and lows would be reduced. I'll be a looper, soon enough, I'm in no real hurry.
So, while my hypos have been on the increase, I'm still in a very good place and a place which I can adjust to with the new arrival in the household. Others aren't so fortunate when it comes to accessing the technology which they need. Here is a link to a Twitter poll about hypos. The results are interesting! However, I know of at least two people who are in the replies with huge hypo numbers. Both are fighting for access to a pump and I have one question; Why?
Why are people with (sorry, my friends, no reflection on you) large numbers of hypos having to fight for access to a pump that will almost certainly reduce those dangerous and debilitating events? Are those numbers not raising large red flags and causing fast-tracks to Pumpville? I'm really at a loss. One hypo is a hypo too many and could lead to horrible things happening, including pre-mature death. To minimise those events should surely be a high priority and if many avenues have been explored without success then it's really time to sign off the pump paperwork.
We've seen these types of tech refusals before, of course, in the last 5 or 6 years since Libre hit the radar. It stinks of purse strings and worry about spending rather than offering the best possible care to diabetics - care which will ultimately reduce NHS spending on diabetes related complications. But what about NICE guidelines? What about them?! I don't know about you guys but, NICE don't live my life or manage my diabetes. I know what I need for my best care and to live my best life. Push for the technology which you KNOW will improve your life now and in the future.
Billy agrees.
Tuesday, November 30, 2021
Diabetes & The Vaccine Booster Hypo
Thank you so much for reading this blog. I do appreciate your visit and your support. As you might know, I LOVE COFFEE! So I've teamed up with a thing called Buy Me A Coffee. If you enjoy my content and appreciate the time it takes to create such things then you can buy me a coffee! If you leave your Twitter @ name when you buy me a coffee, I will personally thank you. If you'd rather be anonymous then that's totally cool. Thanks for the caffeine!
Thursday, July 15, 2021
The Cost of Hypos
Do you remember the "sugar tax" of a few years ago? Our favourite sugary drinks, the life-saving drinks which we used to treat hypos, suddenly became less sweet. Lucozade, Ribena, Vimto and the other teeth rotters became less attractive or pointless if you wanted to treat a low blood sugar. Lucozade clung on to a good chunk of its glucose but it was still much reduced, meaning more would need to be consumed (and bought) to treat a hypo than before the days of the sugar tax.
Today, news reports have highlighted that an independent review of the food that we eat should be subjected to further taxes, specifically sugary and salty food, and vegetables should be prescribed on the NHS.
The story is here if you'd like to read through it.
That story aside, it has made me wonder what the cost of hypos are. I don't mean the physical exhaustion, stress and anxiety. I'm talking cash, moolah, filthy lucre. Just how much does a hypo cost? In an ideal world, nothing. Gluco Gels are available on prescription and assuming you only need 30g of carbs (3 x 10g tubes of glucose) to treat your hypos per month (my allowance) then you're golden, hypos will cost you nothing as a Type 1 Diabetic. Meanwhile, back in the real world, here are my hypo stats for 2021 so far:
At the half way point of the year (183 days, 26 weeks) I'd had a grand total of 74 low blood glucose events. That's just under 3 per week. Of course, that fluctuates depending on a seemingly infinite number of variables but let's assume an average of 3 per week, rather than the days before CGM alerts when my hypo numbers were almost double that amount.
Hypo treatments and their costs will vary. I don't eat and drink the same thing in the same amounts for each hypo. So, what's the most common treat for me? Squashies and Lucozade! Let's do some pricing up:
4 x 330ml bottles of Lucozade are £2.70 (68p per bottle)
1 x packet of Squashies is £1.00
I conservatively estimate that I will drink half a bottle of Lucozade and eat around a quarter of a packet of Squashies for a hypo. Again, that will vary depending on many things but as an average I think that's a reasonably conservative amount. An average hypo is costing me:
34p in Lucozade
25p in Squashies
59p is no big deal, right?
3 hypos per week, though. Alright, £1.77 per week.
Oh, £92.04 per year.
I've had T1D for almost 37 years. £3,405.48
Perhaps I'll still be here in another 37 years. £6,810.96
Remember that my hypo frequency was once double what it currently is? Yikes!
Suddenly hypos are starting to look like expensive events, over the course of my life. I could probably buy a weeks' groceries for what I spend treating a hypo over a year. And now a proposed extra sugar tax of 15% - 25%?
I know that my hypo events are a tiny number compared to some. I wonder how much your hypos are costing you? and do you agree with the proposed new sugar and salt tax? Let me know.
Thank you so much for reading this blog. I do appreciate your visit and your support. As you might know, I LOVE COFFEE! So I've teamed up with a thing called Buy Me A Coffee. If you enjoy my content and appreciate the time it takes to create such things then you can buy me a coffee! If you leave your Twitter @ name when you buy me a coffee, I will personally thank you. If you'd rather be anonymous then that's totally cool. Thanks for the caffeine!
Friday, March 19, 2021
Use The Force
Thank you so much for reading this blog. I do appreciate your visit and your support. As you might know, I LOVE COFFEE! So I've teamed up with a thing called Buy Me A Coffee. If you enjoy my content and appreciate the time it takes to create such things then you can buy me a coffee! If you leave your Twitter @ name when you buy me a coffee, I will personally thank you. If you'd rather be anonymous then that's totally cool. Thanks for the caffeine!
Friday, March 5, 2021
Hobnobs in Hiding pt.2
Did you ever have a bad experience with alcohol? Or perhaps you ate at a particular restaurant and got sick. Did you then spend a while, avoiding that drink or that meal? Maybe you've never eaten or drunk something since the time you were left with no option but to bark into the toilet bowl, soon after. I don't blame you. That's exactly how I feel about Hobnobs but only the original ones. Cover them in chocolate (as seen above) and I'm more than happy to ruin my blood glucose for them. There is nothing wrong with the biscuits, per se, it all stems back to my childhood memories of them.
Hopefully you've read part one of this blog already. If not, just click/tap that link and catch up.
After feeding David hundreds of biscuits and probably tens of thousands of extra calories, hiding Hobnobs in school desks, school bins and my heavily policed home bin, you might think that enough was enough when it was time to start Secondary School. Wrong! A new term, a new school, new classmates, new biscuit hiding challenges! We go again! Raaaaaar!
Initially, I tried my old route of palming off my silver foiled packets of snacks to David. Things had changed. David was less keen to be given food. Perhaps he thought I considered him some kind of charity case, starving for my daily crumby offerings. In addition, the "big school" was exactly that and David wasn't always in my class and had made new friends. Dammit! It was time for a new plan.
The school bins were an option for me on some days. On others, I was a long way from any form of bin and had to take my Hobnobs home but not to deposit in the home bin. I'd already learned my lesson about dumping things there! In my wisdom I decided to hide these little packets under my bed. How very child-like! but, then I was only 11. If you're wondering how many Hobnobs will fit under a child's single bed then the answer is several hundred.
That worked well for a while until the day came for my mum to vacuum my room. Let's call this "H-Day".
I'd like to describe an almighty telling off, here. Something to big-up the drama of that moment. All bloggers use some artistic licence, right? That didn't happen. I was asked "Why?" and my response, blurted out without any real thought: "I don't like them any more".
I mean, it wasn't a lie! but it wasn't the whole truth, either. I didn't want to be the focus of attention, I didn't want to be different, I didn't want to be more different, I was already different. Even at 11, I thought that conversation wasn't something I and my parents were ready for. I didn't want to worry or upset them as much as I didn't want to confess my "weakness".
Finally, things changed. That was the last time I would handle Hobnobs, unwillingly ever again. I was sent to school with a juice box instead. That was perfect. The other kids would drink juice, cola, anything with lots of sugar during the morning, between the first and second lesson. I was fitting in!
The impacts of this time only became apparent as I got older. I lost countless hours in class and in education because of feeling hypo. For around 4 years (before things stopped) I was having a pretty bad hypo, two or three days per week in the hour before lunch at school. At one stage, I collapsed in school, during a PE lesson of Badminton. I had a huge seizure, bit my tongue and had to spend a week at home to recover. Even that incident didn't make me eat my snacks! By now, my friends were old enough and "safe" enough to know that I have diabetes. I still refused to tell them. The badminton incident was chalked down to me falling over and hitting my head, again, not a total lie! I certainly hit my head and fell over.
I decided to blog about this little period in my life because of Eating Disorders Awareness Week. I like to discuss my blog ideas with friends, in advance and we agreed that this might be more accurately described as Disordered Eating or even Disordered Diabetes! Let's go with the former, the latter might light some fires.
The stress, of varying intensities, at that time was frequent. Handling a new chronic illness diagnosis as a child is bad enough. How about a side-order of social anxiety and feeling terrible from hypoglycemia?
I feel lucky. That period in my life could've easily escalated into something much worse. I did carry some of this behaviour into my teens and early adulthood but to a far less dangerous extent.
As an adult, I wonder how this might have been avoided. My conclusion is psychological support. Each person, regardless of age, should be offered support following news of a life changing diagnosis. If I could've normalised and processed the news of diabetes, I'm certain that this behaviour would not have happened. That may have resulted in an easier childhood and a different path as an adult.